So we met with the psychologist on Monday. I had been looking forward to this meeting with a little bit of anticipation but also fear. What is she going to say? I think the worst thing would be hearing nothing at all. How could this be nothing?
So we got three diagnoses...
I am just in the midst of researching all of the diagnoses and what they mean. But I can tell you what they are....
1. A phonological disorder.
2. A developmental coordination disorder which is kinda like saying he is a clumsy kid.
3. A disruptive behaviour disorder not otherwise specified. When you hear the "not otherwise specified" it often means that our child doesn't fit into a nicely wrapped package in one particular diagnosis. He doesn't meet all of the diagnosis criteria so they add the not otherwise specified. Jack gets angry at adults, annoys others, disobeys the rules but not all the time and not across all environments. So they put this label on him.
So where does this leave us? So, Jack will likely qualify for one more year of school funding, he should qualify for in home support but the amount of support is unknown at this time. He should also qualify for occupational therapy and physical therapy and speech language therapy as well.
I have just spent the last week looking into school possibilities. The principal at Jack's school asked us to put Jack into a community kindergarten for this year to allow them to support us fully. If we were to send Jack to our designated elementary school, the Calgary Board of Education provides their own aides supports. They control the funding designated for your child and make the individualized program plan (IPP) which is usually made up of three goals. However if we stayed with the same agency, their IPP's are quite extensive and forever changing. They are fantastic! They have gone above and beyond a lot of other agencies would and they really do care!
But again part of the struggle that comes with the community kindergarten is the driving. Another year of driving! I could just cry. We were so looking forward to having the bus again to cut back on our time driving.
Because we are already in the system we have a social worker with FSCD (Family Support for Children with Disabilities). However the intake process is slightly different than it was six years ago with Zach. I downloaded a form that we need to fill out to get the ball rolling. Thankfully the form is one page however the one question entails how Jack's diagnosis affects our family. What a loaded question. So we will have to wait and see how much support we receive from the government.
If only there was some way that I could cut back on my work hours. Presently I am feeling very much alone with filling out the paperwork and very much alone struggling with this challenging child. Many people just don't get the struggles we have had to deal with. You have to come and stay with us for a few days to truly get it.
So here the adventure continues. I should also mention that the ADHD is certainly not off the table. We were strongly encouraged to pursue that in a couple of years. Unfortunately the psychologist didn't have the specific testing for a child Jack's age. We did the questionnaire for older children which was above Jack's capabilities.